Jan 30, 2023 | Attr Summit
Its been some time since I provided an update – and there are a lot of exciting things coming our way in 2023 ATTR Patient Summit – April 28– 30, 2023 I’m excited to share that in 2023, we will be hosting the first-ever ATTR Patient Summit, taking...
Jun 22, 2021 | Uncategorised
Hereditary Amyloidosis Canada (HAC) and Regroupement québécois des maladies orphelines (RQMO) are pleased to announce the launch of: Unfolding Transthyretin Amyloidosis: The Akcea Canada Young Investigator Grants Program. To learn about eligibility...
May 29, 2020 | Uncategorised
Thank you to all who were able to join us on May 27 for Using Advocacy Tools & #stophATTRnow Campaign webinar. In case you missed it, you can listen to a recording of the webinar...
May 25, 2020 | Uncategorised
Registration is now open for our third and final advocacy webinar – Using Advocacy Tools & #stophATTRnow Campaign -taking place on May 27, 2020 from 8:00p.m. – 9:00p.m. EDT Amyloidosis patients, families and caregivers will learn how to will learn how to use...
May 21, 2020 | Uncategorised
Thank you to all who were able to join us on May 20 for Telling Your Personal Story & How Drugs Are Funded in Canada webinar. In case you missed it, you can listen to a recording of the webinar here:...
May 17, 2020 | Uncategorised
FREE WEBINAR: Are you or a loved one living with hATTR amyloidosis? Hereditary Amyloidosis Canada invites you to a free advocacy webinar for Canadian patients, caregivers and family members taking place on May 20, at 8:00 to 9:00p.m. EDT This interactive session, led...
May 15, 2020 | Uncategorised
Thank you to all who were able to join us on May 13 for The Fundamentals of Advocacy webinar. In case you missed it, you can listen to a recording of the webinar here: https://www.youtube.com/watch?v=eDGy-bZrO7E If you would like a PDF copy of the...
May 13, 2020 | Uncategorised
TTR Amyloidosis Canada is pleased to learn that Akcea Therapeutics and the pan-Canadian Pharmaceutical Alliance (pCPA) successfully completed negotiations for Tegsedi™ (inotersen) by signing a Letter of Intent (LOI) on April 30, 2020. Tegsedi is...
May 7, 2020 | Uncategorised
FREE WEBINAR: Hereditary Amyloidosis Canada invites you to join us on May 13, at 8:00 to 9:00 p.m. EDT for the first in a series of three webinars focused on advocacy. During this free, interactive presentation, Canadian hATTR amyloidosis patients, families and...
Apr 23, 2020 | Uncategorised
Hereditary Amyloidosis Canada invites you to a join us on May 13, May 20 and May 27, 2020 at 8:00 p.m. EDT for our first-ever interactive webinar series for Canadian hATTR patients, families and caregivers to learn about the fundamentals of advocacy and HAC’s recently...
