Exciting Things Ahead! Update from HAC/TAC Founder and CEO Anne Marie Carr
Its been some time since I provided an update - and there are a lot of exciting things coming our way in 2023 ATTR Patient Summit – April 28– 30, 2023 I’m excited to share that in 2023, we will be hosting the first-ever ATTR Patient Summit, taking place...
Unfolding Transthyretin Amyloidosis: Akcea Canada Young Investigator Grants Program
Hereditary Amyloidosis Canada (HAC) and Regroupement québécois des maladies orphelines (RQMO) are pleased to announce the launch of: Unfolding Transthyretin Amyloidosis: The Akcea Canada Young Investigator Grants Program. To learn about eligibility...
May 27 Webinar Recording Now Available!
Thank you to all who were able to join us on May 27 for Using Advocacy Tools & #stophATTRnow Campaign webinar. In case you missed it, you can listen to a recording of the webinar...
Final Advocacy Webinar May 27 2020
Registration is now open for our third and final advocacy webinar - Using Advocacy Tools & #stophATTRnow Campaign -taking place on May 27, 2020 from 8:00p.m. – 9:00p.m. EDT Amyloidosis patients, families and caregivers will learn how to will learn how to use the...
May 20 Webinar Recording Now Available!
Thank you to all who were able to join us on May 20 for Telling Your Personal Story & How Drugs Are Funded in Canada webinar. In case you missed it, you can listen to a recording of the webinar here:...
Second Advocacy Webinar May 20 2020
FREE WEBINAR: Are you or a loved one living with hATTR amyloidosis? Hereditary Amyloidosis Canada invites you to a free advocacy webinar for Canadian patients, caregivers and family members taking place on May 20, at 8:00 to 9:00p.m. EDT This interactive session, led...
May 13 Webinar Recording Now Available!
Thank you to all who were able to join us on May 13 for The Fundamentals of Advocacy webinar. In case you missed it, you can listen to a recording of the webinar here: https://www.youtube.com/watch?v=eDGy-bZrO7E If you would like a PDF copy of the...
Pan-Canadian Pricing Negotiations Successfully Completed for Tegsedi™ (inotersen)
TTR Amyloidosis Canada is pleased to learn that Akcea Therapeutics and the pan-Canadian Pharmaceutical Alliance (pCPA) successfully completed negotiations for Tegsedi™ (inotersen) by signing a Letter of Intent (LOI) on April 30, 2020. Tegsedi is...
Join Our First Advocacy Webinar on May 13!
FREE WEBINAR: Hereditary Amyloidosis Canada invites you to join us on May 13, at 8:00 to 9:00 p.m. EDT for the first in a series of three webinars focused on advocacy. During this free, interactive presentation, Canadian hATTR amyloidosis patients, families and...
MARK YOUR CALENDARS! hATTR Amyloidosis Advocacy Webinars
Hereditary Amyloidosis Canada invites you to a join us on May 13, May 20 and May 27, 2020 at 8:00 p.m. EDT for our first-ever interactive webinar series for Canadian hATTR patients, families and caregivers to learn about the fundamentals of advocacy and HAC’s recently...
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