Sources for additional information and assistance:

Patient resources:

• Hereditary Amyloidosis Facts
• hATTR Compass Patient Guide
• A Closer Look At haTTR Amyloidosis
  
• hATTR Bridge Website
• Hereditary ATTR (hATTR) amyloidosis – An introduction for patients, caregivers and families.
• Amylose héréditaire de la transthyrétine (ATTR héréditaire) – Introduction à l’intention des patients, des aidants et des familles. (French)
• Amiloidosi ATTR ereditaria (ATTRh) – Un’introduzione per i pazienti, gli assistenti e le famiglien. (Italian)
• Amiloidose ATTR hereditária (ATTRh) – Uma apresentação para doentes, cuidadores e famílias. (Portugese)
• Hereditary ATTR (hATTR) amyloidosis: A guide for caregivers
• Amylose héréditaire de la transthyrétine (ATTR héréditaire): Guide à l’intention des aidants (French)

Other Canadian websites and support groups:

• The Canadian Amyloidosis Support Network
• Canadian Organization for Rare Disorders
• Rare Disease Information and Resource Centre
• Orphanet (Canada page)

Clinical trials:

• Health Canada’s Clinical Trials Database
• Clinical Trial Information: visit clinicaltrials.gov
• My Amyloidosis Pathfinder (MAP) Clinical Trial Finder

US websites and support groups:

• Amyloidosis Foundation
• Amyloidosis Support Groups
• Amyloidosis Research Consortium
• Global Genes
• National Organization for Rare Disorders (NORD)
• NORD Rare Disease Support Community
• Genetic and Rare Diseases Information Center (GARD)
• Amyloidosis Awareness Facebook Page
• hATTR Change the Course Website
• Amyloidosis Support Network by Ben’s Friends Facebook Page

International websites and support groups:

• Australia: amyloidosis.com.au
• Brazil: abpar.org.br
• Finland: www.suomenamyloidoosiyhdistys.fi
• France: www.amylose.asso.fr
• France: www.amyloidosisalliance.org
• Germany: www.heidelberg-university-hospital.com/diseases-treatments/endocrine-and-metabolic-diseases/amyloidosis
• Israel: israblog.nana10.co.il/blogread.asp?blog=530202
• The Netherlands: amyloidose.nl
• Portugal: www.paramiloidose.com
• Spain: AMILO (Asociación Española de Amiloidosis)
• Sweden: www.igp.uu.se/research/clinical_experimental_pathology/per_westermark/?languageId=1
• United Kingdom: www.ucl.ac.uk/amyloidosis/national-amyloidosis-centre
• United Kingdom: www.amyloidsupportgroup.co.uk/
• United Kingdom: ttramyloidosis.uk