Sources for additional information and assistance:
Patient resources:
- Hereditary Amyloidosis Facts
- hATTR Compass Patient Guide
- A Closer Look At haTTR Amyloidosis
- hATTR Bridge Website
- Hereditary ATTR (hATTR) amyloidosis – An introduction for patients, caregivers and families.
- Amyloïdose héréditaire de la transthyrétine (ATTR héréditaire) – Introduction à l’intention des patients, des aidants et des familles. (French)
- Amiloidosi ATTR ereditaria (ATTRh) – Un’introduzione per i pazienti, gli assistenti e le famiglien. (Italian)
- Amiloidose ATTR hereditária (ATTRh) – Uma apresentação para doentes, cuidadores e famílias. (Portugese)
- Hereditary ATTR (hATTR) amyloidosis: A guide for caregivers
- Amyloïdose héréditaire de la transthyrétine (ATTR héréditaire): Guide à l’intention des aidants (French)
Other Canadian websites and support groups:
- The Canadian Amyloidosis Support Network
- Canadian Organization for Rare Disorders
- Rare Disease Information and Resource Centre
- Orphanet (Canada page)
Clinical trials:
- Health Canada’s Clinical Trials Database
- Clinical Trial Information: visit clinicaltrials.gov
- My Amyloidosis Pathfinder (MAP) Clinical Trial Finder
US websites and support groups:
- Amyloidosis Foundation
- Amyloidosis Support Groups
- Amyloidosis Research Consortium
- Global Genes
- National Organization for Rare Disorders (NORD)
- NORD Rare Disease Support Community
- Genetic and Rare Diseases Information Center (GARD)
- Amyloidosis Awareness Facebook Page
- hATTR Change the Course Website
- Amyloidosis Support Network by Ben’s Friends Facebook Page
International websites and support groups:
- Australia: amyloidosis.com.au
- Brazil: abpar.org.br
- Finland: www.suomenamyloidoosiyhdistys.fi
- France: www.amylose.asso.fr
- France: www.amyloidosisalliance.org
- Germany: www.heidelberg-university-hospital.com/diseases-treatments/endocrine-and-metabolic-diseases/amyloidosis
- Israel: israblog.nana10.co.il/blogread.asp?blog=530202
- The Netherlands: amyloidose.nl
- Portugal: www.paramiloidose.com
- Spain: AMILO (Asociación Española de Amiloidosis)
- Sweden: www.igp.uu.se/research/clinical_experimental_pathology/per_westermark/?languageId=1
- United Kingdom: www.ucl.ac.uk/amyloidosis/national-amyloidosis-centre
- United Kingdom: www.amyloidsupportgroup.co.uk/
- United Kingdom: ttramyloidosis.uk
Sign up to Stay in Touch!
Get important updates, including Canadian-focused news and information about hATTR amyloidosis, delivered to your inbox.
*By submitting this form, you are consenting to receive emails from Hereditary Amyloidosis Canada. You can revoke your consent to receive emails at any time by using the unsubscribe link, found at the bottom of every email.