Patient Resources

TTR Amyloidosis Canada is dedicated to supporting individuals living with hATTR and wtATTR amyloidosis through community support, research, and education.

  1. Home
  2. Patient Resources

Learn what patients and their supporters have to say about living with with Hereditary (hATTR) amyloidosis.

Click here to read more information on the main amyloidosis diseases, including symptoms, diagnosis, treatments and FAQs.

Join our Facebook groups:

https://www.facebook.com/groups/HereditaryAmyloidosisCanadaSupportGroup
This group contains information for hATTR amyloidosis patients and caregivers only, and exists to facilitate dialogue between members of the Canadian hATTR amyloidosis community.

https://www.facebook.com/groups/674894140823515
This group is for caregivers of patients with Hereditary and Wild Type Amyloidosis. It is a place where caregivers can find and give support to each other.

Read on for patients’ resources, community contacts, and opportunities to connect with others from the community.

Peer Mentorship: We are in the process of developing a Peer Mentorship program to support the needs of the community. Stay tuned for additional details coming soon.

Support Group Meetings – in Person or Virtual: Stay tuned! More details will be available later this year.

Hereditary ATTR (hATTR) amyloidosis: An introduction for patients, caregivers, and families

Hereditary ATTR (hATTR) amyloidosis: A guide for caregivers

Clinical Trial Information

Clinical trials are research studies performed in people that are aimed at evaluating a medical, surgical, or behavioral intervention. They are the primary way that researchers find out if a new treatment is safe and effective. Read on for details on clinical trials taking place in Canada and the US here:

Networks

Fostering Unity and Collaboration with Our Dedicated Partners