Appointment Preparation
Given the multi-faceted challenges you may face in balancing your healthcare, it is quite common to forget elements of your health status during physician appointments. As such, your physician only obtains a partial picture of your status and thus cannot truly optimize your care. Here are some questions and information you may want to share with your physician during your appointment:
Tap the "i" icon for each question to ask
These are my problematic symptoms that need to be addressed (list symptoms)
How can I connect with other patients / caregivers for support?
Who will quarterback my care?
What are my treatment options?
Who are the other physicians that are involved in my care?
If already on treatment, this is how I feel and how the treatment is working for me.
Should I see a genetic counsellor?
Have you done a Congo red stain to confirm amyloid deposits?
Where are my problematic areas of amyloid accumulation?
What type of amyloidosis do I have?
(if hATTR), what are the active genes in my hATTR?