As you may already know, we will be hosting the first-ever ATTR Patient Summit, taking place during the weekend of April 28 – 30, 2023 in downtown Toronto at the Hyatt Regency hotel (370 King Street West, Toronto). I’m excited to share some preliminary details regarding the agenda for this special event:

Friday, April 28th: Meet-and-Greet

Join others from the community for an intimate meet-and-greet cocktail reception, taking place at 6:30 p.m at the Hyatt Regency. All Summit registrants are welcome, regardless of if you are a guest of the hotel.

Saturday April 28th & Sunday April 29th:  Summit Sessions

We are blessed with an impressive collection of guest speakers, generously sharing their time and expertise for the benefit of registrants. Read on for an overview of guests and presentation topics:

  • “Strategies in Drug Development”; Presented by Dr. Avi Chakrabartty, University of Toronto
  • “Advancements in the care of ATTR”; Presented by Dr. Diego Delgado, University Health Network, Toronto
  • “Tips and Tricks, a Nurse’s perspective on the practical management of ATTR”; Presented by Rose Ramm, RN BN, Cardio 1, Winnipeg, MB
  • “ATTR and the Rare Disease Community”; Presented by Durhane Wong-Rieger, Canadian Organization for Rare Disorders (CORD)
  • Panel discussions:
    • “Advocacy and the power of taking control”; Facilitated by Anne Marie Carr, TAC & Durhane Wong-Rieger, CORD
    • “The path towards specializing in amyloidosis – a physician’s perspective”; Facilitated by Dr. Michelle Mezei, UBC Neurology
  • Town Hall: “What are the key issues facing the ATTR community?” Moderated by Anne Marie Carr, TAC, and Dr. Nowell Fine, University of Calgary
  • TAC Strategic Plan; Presented by Anne Marie Carr

This incredible opportunity will bring together patient groups, patients and their caregivers, with the objective of increasing knowledge exchange and education, improving diagnosis, raising awareness, initiating advocacy – and ultimately elevating care of this devastating disease.

Registration is free, but space is limited.  To secure your space, please click here to learn more and to register.  If you have questions, please feel free to email us at:

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