Advocate with us

Your advocacy efforts lead to access to approved therapies

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TAC is dedicated to connecting all patients and families affected by Amyloidosis to the community and the needed resources. One of the ways we do this is through our advocacy efforts.

The Power of Advocacy

We want to empower patients, families, and caregivers, as well as members of the ATTR medical community to advocate to federal, provincial and territorial governments on issues that are important to our community. Your engagement in advocacy can help ensure that the amyloidosis community’s voice is heard, and needs are met by decision-makers.

Your Advocacy Efforts Lead to Access to Approved Therapies

For the first time, new therapies have been developed that treat the underlying cause of hATTR amyloidosis.

Thanks to efforts from the TAC community, three treatments – Tegsedi (inotersen), Onpattro (patisiran), and Vyndaqel–Tafamidis (Pfizer)  – are now accessible through publicly funded drug plans for patients who could benefit. Eplontersen and Amvuttra should be available in the near future.

If you are interested in starting your own support group, please contact us to obtain the necessary materials to get you started.