Additional Resources

The Canadian Amyloidosis Support Network, Inc. is committed to improving survivability and quality of life of Amyloidosis patients by:

      • Promoting amyloidosis disease awareness in the medical community so it can be recognized earlier and appropriately treated.
      • Providing patient education, advocacy, support groups and resources.
      • Supporting high-value research projects

Canadian Organization for Rare Disorders (CORD): is Canada’s national network for organizations representing all those with rare disorders.

Rare Disease Information and Resource Centre (French).

Orphanet: Is a website that is managed by the Canadian Government, dedicated to providing information on rare disease.

For other resources, including US based organizations, click here.

Find an Amyloidosis Centre


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