About Us

Welcome to the TTR Amyloidosis Canada website. My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. Read my story here.

HAC is a not-for-profit organization that was established in 2019 to support individuals living with hATTR amyloidosis, through community support, research, and education. HAC was inspired by my journey of living with hATTR amyloidosis and the lack of community, support groups and information and resources available to me and my family at that time.

hATTR amyloidosis is characterized by the deposit of an abnormal protein called amyloid in multiple organs of the body where it should not be, which causes disruption of organ tissue structure and function.

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