Hello, my name is Anne Marie Carr, Founder and CEO of Transthyretin Amyloidosis Canada (TAC), formerly Hereditary Amyloidosis Canada. Our mission at TAC is to serve those with transthyretin amyloidosis in Canada. I live with Hereditary Transthyretin Amyloidosis (hATTR). I currently live in Hagersville, Ontario with Mervyn, my husband. I have a son and am a grandmother to lovely Abigail.
Like many of you, the road to diagnosis has been long and confusing. When my first symptoms appeared such as breathing problems, they were considered asthma caused by environmental factors. My weight loss and chronic diarrhea were attributed to viruses that were circulating at the time. I remember that tingling sensation in my fingertips, and I had trouble opening a bottle of water or buttoning my clothes. I was finally diagnosed with hATTR in September 2015.
To all of you who suffer from ATTR, please tell yourself that I know that there are days when you feel alone, and the symptoms are simply intolerable.
Know, however, that YOU ARE NOT ALONE.
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The First-ever ATTR Patient Summit was a Great Success
The first-ever ATTR Patient Summit, which took place in Toronto in April, 2023 was a great success! We were joined by more than 100 individuals, representing patients and their caregivers, health care providers, and pharmaceutical partners, who came together to...
Agenda for ATTR Patient Summit Announced!
As you may already know, we will be hosting the first-ever ATTR Patient Summit, taking place during the weekend of April 28 - 30, 2023 in downtown Toronto at the Hyatt Regency hotel (370 King Street West, Toronto). I’m excited to share some preliminary details...
Exciting Things Ahead! Update from HAC/TAC Founder and CEO Anne Marie Carr
Its been some time since I provided an update - and there are a lot of exciting things coming our way in 2023 ATTR Patient Summit – April 28– 30, 2023 I’m excited to share that in 2023, we will be hosting the first-ever ATTR Patient Summit, taking place...
May 27 Webinar Recording Now Available!
Thank you to all who were able to join us on May 27 for Using Advocacy Tools & #stophATTRnow Campaign webinar. In case you missed it, you can listen to a recording of the webinar...
Final Advocacy Webinar May 27 2020
Registration is now open for our third and final advocacy webinar - Using Advocacy Tools & #stophATTRnow Campaign -taking place on May 27, 2020 from 8:00p.m. – 9:00p.m. EDT Amyloidosis patients, families and caregivers will learn how to will learn how to use the...
May 20 Webinar Recording Now Available!
Thank you to all who were able to join us on May 20 for Telling Your Personal Story & How Drugs Are Funded in Canada webinar. In case you missed it, you can listen to a recording of the webinar here:...
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