Register for the ATTR Patient Summit
Join us for information sharing and networking at the first-ever patient focused summit in Toronto, April 28-30.
Registration is free, but space is limited.
Hello, my name is Anne Marie Carr, Founder and CEO of Transthyretin Amyloidosis Canada (TAC), formerly Hereditary Amyloidosis Canada. Our mission at TAC is to serve those with transthyretin amyloidosis in Canada. I live with Hereditary Transthyretin Amyloidosis (hATTR). I currently live in Hagersville, Ontario with Mervyn, my husband. I have a son and am a grandmother to lovely Abigail.
Like many of you, the road to diagnosis has been long and confusing. When my first symptoms appeared such as breathing problems, they were considered asthma caused by environmental factors. My weight loss and chronic diarrhea were attributed to viruses that were circulating at the time. I remember that tingling sensation in my fingertips, and I had trouble opening a bottle of water or buttoning my clothes. I was finally diagnosed with hATTR in September 2015.
To all of you who suffer from ATTR, please tell yourself that I know that there are days when you feel alone, and the symptoms are simply intolerable.
Know, however, that YOU ARE NOT ALONE.
To sign up for the latest updates, including Canadian-focused news and information about ATTR please click here.
Learn what patients and their supporters have to say about living with with Hereditary (hATTR) amyloidosis.
Exciting Things Ahead! Update from HAC/TAC Founder and CEO Anne Marie Carr
Its been some time since I provided an update - and there are a lot of exciting things coming our way in 2023 ATTR Patient Summit – April 28– 30, 2023 I’m excited to share that in 2023, we will be hosting the first-ever ATTR Patient Summit, taking place...
Unfolding Transthyretin Amyloidosis: Akcea Canada Young Investigator Grants Program
Hereditary Amyloidosis Canada (HAC) and Regroupement québécois des maladies orphelines (RQMO) are pleased to announce the launch of: Unfolding Transthyretin Amyloidosis: The Akcea Canada Young Investigator Grants Program. To learn about eligibility...
May 27 Webinar Recording Now Available!
Thank you to all who were able to join us on May 27 for Using Advocacy Tools & #stophATTRnow Campaign webinar. In case you missed it, you can listen to a recording of the webinar...
Final Advocacy Webinar May 27 2020
Registration is now open for our third and final advocacy webinar - Using Advocacy Tools & #stophATTRnow Campaign -taking place on May 27, 2020 from 8:00p.m. – 9:00p.m. EDT Amyloidosis patients, families and caregivers will learn how to will learn how to use the...
May 20 Webinar Recording Now Available!
Thank you to all who were able to join us on May 20 for Telling Your Personal Story & How Drugs Are Funded in Canada webinar. In case you missed it, you can listen to a recording of the webinar here:...
Second Advocacy Webinar May 20 2020
FREE WEBINAR: Are you or a loved one living with hATTR amyloidosis? Hereditary Amyloidosis Canada invites you to a free advocacy webinar for Canadian patients, caregivers and family members taking place on May 20, at 8:00 to 9:00p.m. EDT This interactive session, led...
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