Inaugural AL Amyloidosis Conference in Brussels 5th and 6th July 2024
We recently had the opportunity to attend the inaugural AL…
Empowering Amyloidosis patients, families & caregivers
Our community offers resources and support for the ATTR community
Join us in providing programs and activities to benefit the lives of amyloidosis community, and make sure the community’s needs are met by decision-makers
Engagement Programs
Fostering community connections through enriching activities and programs.
Educational Initiatives
Empowering individuals with educational resources and initiatives.
Empower. Support. Transform.
Support our mission
to extend help and hope.
Our program
Amplifying the amyloidosis community's voice
We want to empower patients, families, and caregivers, as well as members of the ATTR medical community to advocate to federal, provincial and territorial governments on issues that are important to our community. Your engagement in advocacy can help ensure that the amyloidosis community’s voice is heard, and needs are met by decision-makers.
Collaborative networks
Building strong community alliances for impact
We collaborate with a network of organizations, businesses, and community leaders to expand resources, enhance services, and create sustainable solutions.
Support our cause
Make a difference today and donate for change
Your donation supports our programs and activities to benefit the lives of amyloidosis patients, their families and caregivers. We allocate those funds free from influence.
Please note: HAC is a not-for-profit organization – NOT a charitable organization. Please note that donations cannot be used for tax purposes.
See the Full Recap of Our Events
Our TAC Activities
FACTS
What is amyloidosis?
Amyloidosis (am-uh-loy-doh-sis) is a disease that occurs when an abnormal protein (amyloid) builds up in the tissues and organs of the body, causing them to not work as they should. Our bodies make several proteins that can cause amyloidosis, and one of the two most common types is transthyretin (TTR).
hATTR amyloidosis is estimated to affect 50,000 people worldwide, with more than 130 different TTR gene mutations identified.
hATTR amyloidosis runs in families – A person only needs to inherit one copy of the affected gene from one parent in order to develop hATTR amyloidosis.
It can often take more than 4 years and visits with 5 or more doctors across different specialties to receive an accurate diagnosis of hATTR amyloidosis.
New therapies that address the underlying cause of hATTR amyloidosis are providing hope for people living with the disease.
Patient Resources
Digital Patient Checklist
Transthyretin amyloidosis (ATTR) is a complex condition caused by the misfolding of the transthyretin (TTR) protein. Normally, TTR transports thyroxine and retinol-binding protein, but genetic mutations or age-related changes cause it to form amyloid fibrils, leading to organ dysfunction.
Our goal is to provide those affected by ATTR with a digital patient checklist, empowering them to take control of their health. This checklist will help individuals identify potential symptoms, explore diagnostic tools available in Canada, and prepare for physician appointments. By doing so, we aim to support timely diagnosis and effective management of ATTR, improving the lives of those impacted by this condition.
Fostering Unity and Collaboration with Our Dedicated Partners
Latest news
Latest News & Updates
in ATTR
Report on hATTR treatments shared at ICER meeting
A report on treatments for hereditary transthyretin-related (hATTR) amyloidosis by…
New Genetic Testing Program for hATTR patients
Akcea and Ambry Genetics to Launch hATTR Compass, a Genetic…
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Main phone number
For donation related
TTR Amyloidosis Canada
98 David Street Hagersville, ON
N0A 1H0
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